Tuesday, May 15, 2012

Can you stop now?

So lately, my life has been filled with these balls of stress pounding me like random hailstones.

Here's today's:

To get appropriate services or FAPE you need a decent, education specific evaluation. In msk's case, two evaluations - neuro-psych and speech-language.

Insurance won't cover education specific evaluations, and the general medical evaluations that they will cover are useless at IEP meetings

My employer has special support services for employees dealing with autism, so I thought, "What can it hurt to call and ask?" I called and asked and after talking for 45 min to give her the background story, I was pointed to some sort of fund that my medical insurance company has to help people with medical services that they don't cover. As far as I could tell I needed to prove financial need and what they wanted to cover was ABA services, which is not the same as assessment. So basically she had pointed me to a dead-end that took probably another hour of my time.

The autism "expert" called back to follow up and I (politely) told her that her recommendation had been no help. She told me the names of some support services, but it was pretty clear that after about 9 years of dealing with autism and services and schools I knew more than she did. So the answer to the "What can it hurt?" question is that it can waste my time and cause me general aggravation.

Today she called again to re-follow-up or something. She asked if I had figured out how to fund the evaluations and I said, yes, by my credit cards which thankfully allow $20K worth of debt. She repeatedly asked me if there was any more help she could provide. I wanted to ask, "More? You haven't provided any help and I wish I hadn't called in the first place." Instead, I took down her number and told her if I thought of anything I would call.

I don't need to get pissed about insurance coverage (or lack thereof) at this point. I am totally wigging out about this IEP meeting coming up next week. I worry about the money involved. I worry about making the right decisions. I worry about how much contention and friction there will be when we discuss these assessments. I worry about how much stress my husband and I can take when it comes to dealing with schools and special education. Isn't that enough without worthless people bugging me at work to ask if they can help me? Puh-LEEZE!

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